News Worms
News Worms

Charlie Gard's situation calls for more discussions on end-of-life care

Charlie Gard's situation calls for more discussions on end-of-life care

A High Court judge has banned anyone from revealing the exact time of Charlie Gard's death after the deadline for his parents to come to an agreement with doctors on his end-of-life care passed.

At yet another contentious High Court hearing yesterday, his mother Connie Yates fled, screaming 'What if this was your child?' after being denied her final wish to take her son home to die.

He said that nurses at the Great Ormond Street Hospital have volunteered to care for Charlie at a hospice if the judge agreed to it.

In April, Justice Francis ruled that the hospital could allow the child to die after doctors and the court had deemed treatment futile, against the wishes of the child's parents.

However hospices lacked the resources and staff to provide ventilation for more than "a period of hours", the hospital said.

Yates and Gard had wanted to take him to the United States to undergo experimental treatment, against the advice of Great Ormond Street doctors who said it would only prolong the baby's suffering.

However, the courts and hospital refused to allow them to transfer their son to another hospital.

The judge did not state when Charlie would be transferred from Great Ormond Street to a hospice or where that hospice was, ruling that those details should not be published. Shortly after birth, he was struck with an extremely rare disease called mitochondrial DNA depletion syndrome (MDDS).

At the end of the hearing attended by Charlie's mother, Connie Yates, Francis said he felt a hospice, rather than the family home, would be best.

Doctors at Great Ormond Street said the therapy would not help.

He said the "window of opportunity has been lost" to help Charlie, according to Sky News.

The parents, who wanted to take the 11-month-old to the USA for experimental treatment, gave up their struggle earlier this week after recent scans showed irreversible damage to his muscles.

The decision concludes a bitter five-month legal fight from Ms Yates and Mr Gard, whose appeal to give their son treatment was previously rejected by the European Court of Human Rights. On July 17, Charlie was examined by US neurologist who claimed that an experimental therapy could provide up to a 10 percent chance of improvement in the child's condition.

"We have decided it's no longer in Charlie's interest to have treatment".

They abandoned their legal fight on Monday after concluding that Charlie had deteriorated to the "point of no return". He has brain damage and is unable to breathe unaided.


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